Guidelines for navigating human subjects review and preparing data sets for sharing with the ISDS Technical Conventions Committee – International Society for Disease Surveillance


Thursday, December 12, 2013; 12:30 – 1:50pm


Grand Ballroom A


Atar Baer, Public Health – Seattle & King County

Marcus Rennick, Marion County Health Department

David Atrubin, Florida Department of Health

Aaron Kite-Powell, MIT Lincoln Laboratory

Abstract Summary

The purpose of this panel is to facilitate the dissemination of surveillance-related use cases by public health practitioners with accompanying benchmark datasets to method developers. The panel will present their experiences with preparing patient-level emergency department data sets to accompany a use case submitted to the ISDS Technical Conventions Committee. We will review methods for cultivating a data set that is appropriate for sharing; experiences with and strategies for navigating the IRB human subjects review process; and legal and ethical issues related to sharing syndromic surveillance data with third parties.

Abstract (pdf)

Abstract Citation

Online Journal of Public Health Informatics. 2014; 6(1).